Thursday I received platelets. Mine was 6,000 which is quite low. Then today I spiked my first fever. It was 100.4 to 101 which isn’t a big deal for normal people but it is for someone who doesn’t have an immune system. I spent the whole day sleeping and that’s what I’m going to do more. I’m tired and nauseated. I can’t wait for my body to start building.
I haven’t felt the greatest. I was ready to be discharged yesterday to go to the hotel but an hour and a half before I was going to leave fever hit. I’ve been battling fever, nausea, and fatigue. I’ve only been out of bed long enough to go to the restroom. It’s been tough but doable. They have run multiple tests but can’t find the source of the fever.
My bloodwork and cultures show no growth. Everything looks good leaving it pointing at the new cells setting up and running full speed ahead resulting in fevers. They decided to give me a steroid to calm my bonemarrow down a bit. This morning was tough with nausea, vomiting, and diarrhea. But after I showered and took a little nap everything turned around. I was able to eat dinner like a normal person not like a picky 2 year old who doesn’t want to eat her green beans.
Its test day, they tested my lungs, did the echo and bubble study on my heart. Then an ultrasound on my arms, legs, and chest. Echo and bubble study was good so my heart is ok. The ultrasound showed no blood clots.
We are still waiting on the results of the lung test hopefully we get that tomorrow. My oxygen level is still great, vitals are all still good. Still some blood in her urine, no results about that. So now we wait for more results tomorrow.
I’m slowly feeling better. I was actually able to do the prep for the colonoscopy last night. Fun fun! Which led to very little sleep last night. Plus they woke me at 6:30 AM for the test.
After the test, I napped till PT woke me to go for a walk. It was short because I was tired but I managed. I’m looking forward to bedtime and hopefully a good night’s rest.
I’m no longer hooked up to the iv so I shouldn’t be awake to pee every 2 hrs. That will be helpful.
One of my doctors mentioned starting to slowly wean me off of some of my meds which will help tremendously. I have an entire pharmacy at the hotel. It’s crazy how much medication I take. I’m so looking forward to moving on and someday going home. It seems like an eternity since I’ve been gone.
I was able to spend time with my family and go out to dinner. I’ve missed everyone terribly. It’s been almost 2 months since I left to start this journey and hopefully not too many more to go. I’m very tired tonight but trying to stay up a little longer than I have over the last couple of months. It’s a struggle the grandkids wore me out. It was well worth it tho.
(From my sister, Deanna) Andrea is back in the hospital again. I just had to call the squad, she passed out twice on me. She has not been feeling good the last 2 days and has had diarrhea. I believe she may have got too hot and dehydrated because she started feeling light-headed in the shower. She jumped out and she sat on the toilet and that’s when she started to shake like last time only this time she passed out on me twice. I’ll let ya know when I know more probably won’t know anything till tomorrow some time.
I’m still at the James but hoping to be released soon. My sodium level is down which they’ve decided to stop my kidney hormones to see if I no longer need them or maybe a smaller dose. My CT scan was fine except it showed possible low-grade colitis. No CDiff, that’s a relief. I’m feeling much better no nausea and diarrhea. It’s been a long couple of days without much sleep during the night. This girl is ready for bed.
It’s been quite the day. My day started off really well. I was feeling great and had an early shower. Then boom, I didn’t make it to the bathroom twice. Ugh, and I just showered. Noooo. It’s part of the struggle.
Things I’ve had to deal with at times but I will get past this. Someday. Hopefully soon. So yes I’m still in the hospital. I’m hoping to get out tomorrow but still not sure. My numbers are out of wack and my kidneys are showing a little distress. They want to get everything back where it should be before sending me back to the hotel. Otherwise, I feel good. I have more energy, I can stand to shower, brush my teeth, and get dressed all at the moment without breaks. That is great! The little things we take for granted. This journey makes those little things so important. I miss so many people, my life, and normalcy
I’m starting to get new hair. It’s a slow process but it’s coming back.
When the doctor visited this morning she said my goal was to eat as I would normally and walk. If i had a good day she would release me tomorrow. Fingers crossed no other setbacks in blood work.
I feel great and had a really good day. I ate all my meals and drank almost the liquid I needed for the day. Randy visited and we walked 4 laps in the hall. That’s huge for me. The most I’ve done was two. But it felt great and I was going well walking and holding my sweethearts hand. Did my heart as good as my body. It’s been a great day. Hopefully, they’ll get me out of here tomorrow. I can’t tell you how ready I am.
Yesterday I felt unstoppable, today not so much. Whenever I have a really good day it’s followed by a very tiresome day. It’s been that way since day one. I’ve been lightheaded and very fatigued today. Ive spent the day in the recliner watching tv trying to stay awake. Hopefully, tomorrow will be a better day and I will finally get out of here.
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